Two people with cystic fibrosis dating each other
Katie Prager died Thursday, five days after her husband, Dalton Prager.
Both had cystic fibrosis and complications from lung transplants."We were given a great gift, we knew her time was short and she was able to do a few things that she wanted, and I am grateful for that," Katie Prager's mother Debbie Donovan wrote Thursday on the couple's Facebook page.
About one in 3,000 to 3,500 babies are born with cystic fibrosis.
Their story is tragic, but progress is being made in treatments.
Today there are more adults than children living with cystic fibrosis, a progressive lung disease that used to kill children before they reached adolescence.
Cystic fibrosis summer camps and group activities no longer exist.
The Pragers knew the risks but decided having time together was worth the chance of dying younger.
Major advances in treating the disease started with the discovery of the cystic fibrosis gene in 1989.
"The days to follow will not be easy but I find comfort in knowing that my girl lived, she really lived." Katie Prager, 26, was in hospice care at her home in Kentucky in the US.READ MORE: * Man with cystic fibrosis dies before reunion with wife * Movie: Impressive, hard to fault * Life-threatening genetic condition Cystic Fibrosis hits family twice at once The couple longed to see each other again before they died, but neither was healthy enough to travel.They had aggressive forms of the disease in part because they shared a dangerous drug-resistant bacteria.Children and adults with cystic fibrosis are discouraged from having close contact with each other because of the risk of infections.I fully expect them to play sports, graduate high school, go to college, with no limitations," said Blakeslee Noyes, director of the cystic fibrosis centre at Cardinal Glennon Children's Hospital.
Katie and Dalton received lung transplants within the last two years and developed complications including lymphoma.